June 9, 2025
Our goal is to raise awareness and funds by advocating for the Batten disease community affected by all CLN types.
Funds raised will go towards the BDSRA Foundation's greatest need(s). If you're raising funds for this specific fundraiser through your Fam Fund, you may choose where your donations are directed (greatest need, support, research, or advocacy).
Together, We Are Batten Advocates for a Cure.
The deadline to order T-shirts has passed. T-shirts were shipped in late May. You may still register for the International Batten Disease Awareness Day Virtual 5K on June 9.
Register Now |
There is something for EVERYONE to do to raise awareness and funds for Batten disease and the BDSRA Foundation for International Batten Disease Awareness Day on June 9:
Download Your Bib |
PARTICIPATE IN OTHER BDSRA EVENTS:
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FamFunds Team |
$21,454.20
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Daxx Deserves |
$3,830.47
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Team Connor B |
$2,183.90
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Team Patterson |
$1,942.25
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Emma's Roses (Dellomorte) |
$1,256.90
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Isla's Army |
$1,123.15
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Team Milo Man |
$668.75
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Hope for Izzy |
$467.25
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Team McDonough |
$458.25
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Laura Tucker's Team |
$394.80
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Rally for Ryan |
$253.75
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BDSRA Staff Team |
$132.40
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Team Marshall |
$100.60
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Team Peter |
$25.00
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Weimer Lab |
$25.00
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