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Patient & Care Partner Advisory Boards

Engaging Patients as Partners

As an independent nonprofit organization, CISCRP is uniquely positioned to assist companies and institutions in organizing and running their Patient & Care Partner Advisory Boards. CISCRP’s extensive relationships with patient advocacy groups, patient communities, and former study volunteers play a key role in ensuring the best board composition.

CISCRP can execute this activity in-person or virtually using teleconferencing software. The latter, more flexible virtual model enables greater access and more global representation.

Experienced in gaining feedback in several areas of the clinical research process

  • Patient journey
  • Protocol/study design
  • Study synopses
  • Schedules of assessments
  • Informed consent form design
  • Study communications
  • Clinical trial medicine kits
  • Clinical trial technologies and procedures
  • Other study-specific materials (e.g., post-trial communications)

The Research Services team at CISCRP has extensive experience engaging patients and care partners outside of the United States.

We have a network of skilled moderators around the world which allows us to conduct advisory boards in a variety of languages. All ex-US advisory boards and/or interviews conducted in a language other than English can be simultaneously interpreted to English in real time.

Learn more about advisory boards

BROCHURE

Overview of Patient Advisory Boards

Article 

Findings from a Long-Term Patient Engagement Model

WHITE PAPER

Insights and Best Practices for Planning and Implementing Patient Advisory Boards

Interested in more information?

Drugviu

Click on the resources listed below to download the full versions of Drugviu’s materials. 

Pandemic Response Network Flyer: English

Red de Respuesta a una Pandemia: Español

Peer Plus

Click on the resources listed below to download the full versions of these materials. 

Peer Plus: Mission and Capabilities

Latino Union of Chicago

Click on the resources listed below to download the full Latino Union of Chicago Annual Report. 

 

Advocate Aurora Health

Click on the resources listed below to download the full versions of Advocate’s materials. 

  • Dominantly Inherited Alzheimer’s Network Trial Unit 

Dominantly Inherited Alzheimer’s Disease Brochure
Expanded Registry Flyer (English)

Enfermedad de Alzheimer de herencia dominante
Expanded Registry Flyer (Spanish)

  • Clarity AD Clinical Study Information

Forgetting the Little Things
Concerned About Memory Loss?

   

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Institute for Population and Precision Health (IPPH)

Click on the resources listed below to download the full versions of IPPH’s materials. 
 

Einstein Healthcare Network

Click on the resources listed below to learn more about Einsteing Healthcare Network’s resources. 

TREND Community

Click on the resources listed below to download the full versions of the TREND Community’s materials. 

 

Community Voice Report July 2020: COVID-19 Positive

 

Community Voice Report August 2020: Pericarditis

Fox Chase Cancer Center - Temple Health

Click on the resources listed below to download the full versions of the Fox Chase Cancer Center’s materials. 
Be the Breakthrough: Understanding Clinical Trials

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Lung Cancer Initiative of North Carolina

Click on the resources listed below to view the full versions of LCI’s materials. 

Lung Cancer Risk Assessment Handout

PRA Health Sciences

Click on the resources listed below to view the full versions of PRA’s materials. 

Duke Health

Click on the resources listed below to view the full versions of Duke’s materials. 

Visit Discover Duke Research on Facebook

Download the handout below in English or Spanish

North Carolina Clinical Research

Visit North Carolina Clinical Research’s website