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My name is Sian Borowiak, Eben's mummy. All my life I have waited to be a mum. Anyone who knows me know this. The day our beautiful baby boy was born was the happiest day of our lives. "The best thing that has happened to us", we say this often. But as life goes it will always through up it's challenges. We noticed Eben never tracked objects and never focused on our faces. Having an educational background I thought it would just develop. It didn't. We sought help from the GP, who referred to the consultants. The NHS appointments were taking too long so with a lot of help from family and friends we paid private. We had a lot of test and spoke to a lot of doctors and in April he was diagnosed with lebers congenital amaurosis. This means Eben is blind.
It doesn't change that we have our amazing son. Already he is adapting to life with visual impairment. But we need help to adapt our home to help Eben's development. We are told his sight will hinder him meeting goals. But not if we can help it.
We want to adapt our home and make Eben his own sensory room. Give him the best start to life. So his future will be bright.
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