News and information from the Cleft Lip and Palate Association
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Now that Awareness Week 2015 is over, we'd like to say a huge THANK YOU to everyone that made a difference this year!

Whether you came to one of our walks, put on an event of your own or even just helped to spread the word on social media, you've helped us to make a big impact. From talks at schools to cake sales to skydives, we've been thrilled to see how many of you have got involved, and we look forward to telling you more about all of these once the totals are tallied up.

Getting involved isn't just limited to our Awareness Week - there are plenty of opportunities for you to help CLAPA as a fundraiser or volunteer - including a few in this email. Let's keep the momentum going all year round until the whole UK is #cleftaware!

In the meantime, check out some of the photos from our walks on our Flickr page >>

 
 

Vote for CLAPA!

With your help, CLAPA could receive nearly £25k in funding from the Aviva Community Fund. It's easy - all you have to do is register using your email address or Facebook, vote for CLAPA, and share within your network! It takes just a few clicks to make a real difference.

Vote Now >>
 

Huge Funding Boost to CLAPA's Work in Scotland

CLAPA will start to increase its network of volunteers across Scotland thanks to a £199,838 award from The BIG Lottery Fund's Investing in Communities fund. Read More >>
 

Chris Joins CLAPA

"I joined CLAPA in May 2015 as National Volunteering Officer to support volunteers in the areas of the UK without a Regional Coordinator. It is wonderful to be working with so many inspiring and dedicated people who support Cleft Lip and Palate."
 
 

"CLAPA has a fantastic relationship with its volunteers, fundraisers and the Cleft Teams, so I’ve been given a really warm welcome already. I have very strong links with CLAPA being born with a Bilateral Cleft Lip and Palate. I have been a volunteer and fundraiser for many years and remain Chairman of the Great Ormond Hospital Branch. We’ve already seen some fantastic achievements at CLAPA and I’m very much looking forward to building on these over the coming months. "

You can get in touch with Chris about volunteering by emailing volunteer@clapa.com.
 

Volunteering Opportunities

Below are two chances to get involved with volunteering for CLAPA.

In both cases, expenses will be paid, including reasonable travel and meals, and accommodation will be provided for those that need it.
 
 

Volunteer Induction Day

Become an official CLAPA volunteer at our next Induction Day - a chance to learn more about CLAPA, how you could help, meet others locally, and, of course, have fun!

DATE: Saturday 13th June
LOCATION: London

As one parent volunteer said after completing an induction day and going on to fill several volunteer roles: "I like to think of CLAPA as a family, we all support each other, share our highs and our lows and offer encouragement and advice to each other."

>> More about volunteering
>> Volunteer Roles

Contact Tansy Miller tansy.miller@clapa.com
 
 

Parent Contact Training Weekend

Be there for another parent in need by training to become a CLAPA Parent Contact.

DATE: Weekend of 11th-12th July
LOCATION: London

Over the weekend you'll learn not just about cleft and CLAPA, but also about listening skills and how to be supportive to those who may be going through a tough time. We will go through case studies and scenarios with you to make sure you're ready to take on the role, and there'll be plenty of chances to talk to other prospective Parent Contacts.

Please apply by Friday 12th June

Contact Claire Evans: claire.evans@clapa.com
 
 
 

STUDY: Visible Differences and Intimacy

A new study is looking to explore the impact of a visible difference (such as a cleft scar) on intimate relationships. The study will be in the form of one-to-one interviews, either in person or over the phone.

If you are aged 18 or over and either you or your partner has an altered appearance and you would be willing to discuss your experiences then more information can be found by following the link below or by contacting Nick on 0117 328 1891 or nick.sharratt@uwe.ac.uk

More Information >>
 
 

Share Your Thoughts on Healthtalk's Cleft Lip & Palate Module

Healthtalk.org is a fantastic resource packed with information and video interviews with people affected by a huge range of health issues. The Cleft Lip and Palate module launched late last year, and as someone affected by cleft, Healthtalk.org would love to know what you think!

You can either attend a special focus group to discuss this, or you could simply submit your thoughts to the researcher who has put the page together.

More Information >>
 

The CRANE database records information on adults and children born with a cleft in England and Wales. The project team are planning to hold a 'Consultation on CRANE Database and Website Changes' meeting and would like to invite 1-2 people involved with CLAPA to give their input on how the database and website can be more relevant to parents and patients, as well as new features you might like to see. More Information >>

There is a Patient Representative vacancy on the Cleft Lip and Palate Clinical Reference Group (CRG). CRGs are responsible for providing NHS England with clinical advice regarding specialised services, and for the delivery of key ‘products’, such as service specifications and commissioning policies. More Information >>
 
 
 
Cleft Lip and Palate Association
Green Man Tower
332B Goswell Road
LONDON, EC1V 7LQ
020 7833 4883
 
You are receiving this email because you have signed up to the CLAPA Community or have bought feeding equipment from us in the past and expressed an interest in finding out more about our services. In addition to our monthly newsletters, we will only email you about local events and activities, or announcements that are relevant to you.