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Rubinstein-Taybi Syndrome
Click Here to learn more about RTS

Made with Love for families and friends of Rubinstein Taybi Syndrome children and adults
to learn more about iPads, apps and a little bit of everything else.



iPad Accessories (hot gadgets)
iPad Accessories (hot gadgets)

Monday, December 10, 2012


The iMums Give Away 14 iPad Minis in Mini Madness Campaign – News


minimadness postimg1 The iMums Give Away 14 iPad Minis in Mini Madness Campaign   News 

Twelve iPad minis are being given away through Dec. 31 in a “Mini Madness” global campaign to promote quality children’s educational apps. App developers from ten countries on four continents have joined in the giveaway, which is organized by The iMums, a children’s tech review site run by four moms from four corners of the earth. 

UPDATE: 14 iPad mini giveaways will be launched by Dec 10th

 Open worldwide

Enter TODAY


The iMums are very pleased announce the fourth in our series of iPad Mini giveaways, this is sponsored by  four great developers – Tizio, Eric Sailers Apps, Pete and Sneakers and Human Body Detectives. The iPad Mini is the hot gift this holiday season and is a great size for children – lighter and easier to carry than the original iPad, but with access to the same great catalog of apps. The prize package, which totals to over $400, includes all you need to get started:-
  • A new Apple iPad mini 16GB WiFi;
  • A Cygnett Workmate shock-absorbing iPad mini case;
  • A huge collection of apps to kickstart your iTunes library!

Wednesday, December 5, 2012

iPad Mini Giveaway #2

Technology in Education & AppyMall

have a giveaway of an iPad Mini
with the support of 4 wonderful developers

Abitalk

Offers over ninety mobile Education Apps under Abitalk Incorporated or Emmy Chen focused on reading math, phonics and languages.  Their apps are packed with content, but each one focuses on a single skill, with bonuses and awards built in.  As parents, we understand how kids learn and what gets them excited.  As developers, we are able to channel that knowledge into Educational Games your kids will want to play. To keep up to date with their latest releases you can head over to their  Facebook page or ‘follow’ them on twitter.
………….

Bebebe Co.

The makers of Baby Learns mobile app series. Bebebe is a world where learning is fun and imagination is key! They believe the iPad is a gateway to the future of education and the new method by which they  learn. Technology is our life’s work and we wanted to apply it to enhance the learning experience through fun and exploration. Please have a look at their apps, or their Facebook  or Twitter
……………

i Get It! 

Applications are designed to facilitate cognitive growth through building language skills, including vocabulary, sentence structure and social skills.  iGet It Apps can be utilized by all ages and diverse populations.  Each app has real photo images for contextual support, personalized text options for visual support and recordable audio capabilities for auditory support all which are easy to modify and customise. To find out more about their apps, ‘like’ them on Facebook or ‘follow’ them on Twitter
 ……………

Sogabee

Are the developers of Sight Words Hangman, Sight Words & Spelling with Pixopop and SoGaBee’s Math Facts fun and bringing fun and friendly education apps is what we do.  For more information  Facebook or ‘follow’ them on Twitter
………….



Saturday, November 3, 2012

WIN one of SIX iPad minis being given away by


Is giving away SIX iPad minis! (just in time for Christmas!)

 Currently they have five giveaways running but there are more in the pipeline. Smart Apps for Kids will continue to announce them separately so stay tuned in.
It's easy to enter

click the link

I want to WIN a iPad Mini from Smart Apps For Kids



Saturday, August 11, 2012

Buddy's Song

Buddy is a 13 year old boy with Rubinstein-Taybi-Syndrome
Buddy's Song was written, played and sung with L O V E by his Grama





A Great Little Video
 about RTS made by  rachelbethmusic's 
[http://www.youtube.com/user/rachelbethmusic?feature=watch]
Rachel's sister April has RTS, and what a great sister Rachel is!

 



Wednesday, July 25, 2012

World RTS Day

World RTS Day aims to honor those with disorder, raise awareness
Originally published July 03, 2012


By Katie Crowe
News-Post Staff


World RTS Day aims to honor those with disorder, raise awareness


Photo by Graham Cullen


Gabe Cameron, 35, who has Rubenstein-Taybi syndrome, sits with his mother Terri outside the family's Frederick home.




According to Frederick resident Terri Cameron, simply "knowing" allows parents of children with disabilities to deal with any challenges that may arise. "Knowing gives you strength to move on and do what is best for your child," she said.

Cameron and her husband, Billy Cameron, are the parents of 35-year-old Gabe Cameron, who has Rubenstein-Taybi syndrome, a rare genetic disorder for which there is no specific treatment. Gabe was born with RTS but it was not diagnosed until he was an adolescent.
Those with RTS do share some similar facial and other features, such as broad thumbs and toes, and the disease is also associated with mental disability. The degree of disability, as well as other medical issues, however, varies with each individual.

Gabe is pretty healthy on a day-to-day basis, his mother said. He is mentally delayed and has experienced medical problems, including almost complete vision loss, mild hearing loss and seizures, and he takes medication for gastrointestinal reflux. Over the years, it has also become a bit harder for him to communicate, Terri Cameron said. Many of the medical problems Gabe has are commonly associated with RTS.

Following his diagnosis, Gabe's parents placed him in early intervention programs, Terri Cameron said. For about 30 years, The Arc of Frederick County has provided Gabe and his family with care from residential coaches and skills educators, as well as those who provide respite for the family.

In 1998, Gabe graduated from Walkersville High School with a certificate of attendance and also had some vocational training prior to graduation, Terri Cameron said. Since 2000, due to his medical issues, Gabe has been at home but goes out every week with his caregivers and family to the fitness gym at Frederick Memorial Hospital, to the mall, out for lunch and other activities.

Off and on for about 10 years, Terri Cameron has been active on an email listserv on rubenstein-taybi.org, a website devoted to those diagnosed with the disease and their families. Individuals living all around the world interact via the listserv, sharing experiences, suggestions of where to research or simply providing support to one another.

In May, a parent of a child with RTS living in Australia proposed the idea of creating a World RTS Day to all family members active on the listserve, Terri Cameron said. The idea behind establishing one particular day to be devoted to RTS was to unite to celebrate those diagnosed with RTS, raise awareness and pay tribute to Dr. Jack H. Rubenstein, who along with Dr. Hooshang Taybi, first reported on the disease in 1963. The Australian parent proposed July 3 as being the first World RTS Day, since that is the date when Rubenstein died in 2006.

After getting a great response from RTS families around the world, the parent created worldrtsday.org and encouraged families to upload content to the site, including photographs, articles and other information about RTS. According to the Camerons, World RTS Day is about making RTS a well-known disorder to families and doctors alike.

"It's important to get the word out because many times a child and their parents go through many years in the dark about what to expect of their child or how to best help them learn and succeed," she said.
"When you know these things, you can move on and stop the wondering. They can begin appropriate testing for frequently occurring medical issues, or schooling for your child with the confidence that other children with RTS have learned basic skills and your child can, too," she added.

"I know (the parents') responses can't take the place of medical advice, but their experience sometimes outweighs the doctors' lack of concrete experience living day-to-day with our children," said Terri Cameron said.

Despite the challenges that may come with having a child with RTS, the Camerons said they have never looked at it as being something negative, Billy Cameron said.
"You're never going to gain anything from being upset about it," he said.
"Since Gabe was born, not once have we thought, 'Why us?'"

 http://www.fredericknewspost.com/sections/art_life/display.htm?StoryID=137725

Tuesday, May 1, 2012

WOW A4CWSN GIVES AWAY $500.00

 


To enter all you have to do is Share Videos and Information about
Apps & Developers and you could be the winner of  

$500.00

YEA, $500.00 BIG ONES!

A4CWSN has set up a  RaffleCopter to provide a way
to share the videos that A4CWSN produces of Apps that
are educational and to help promote developers.

Check the RaffleCopter each day and complete the tasks to have more chances to WIN BIG!

In return A4CWSN will award one person $500 for doing so

And that one person could be YOU!. 

We all know first hand that taking care of Children with Special Needs can be extra costly, so maybe this will help just enough to make it that little bit easier.

There are only 2 required tasks to complete and the rest are up to you, obviously, the more you do the more chances you have to WIN BIG!

This RaffleCopter starts on May 1st and ends on May 31st with the winner announced on June 1st.

ENTER HERE TO WIN BIG
 





Saturday, April 28, 2012

 This Giveaway has Ended

The Social Express by The Language Express

From 
AND 



The Social Express
The Social Express by  The Language Express Inc. is an app for children and young adults with social learning challenges; it is primarily aimed at Elementary School -aged children.

3 WAYS TO WIN
 The Social Express (iPad version)
    The Social Express - MAC version
The Social Express - PC version



Friday, April 20, 2012

Willowbrook The Film By Ross Cohen



-Synopsis-


In 1964, a young pediatrician begins his residency at Willowbrook State School in Staten Island, only to discover that the institution is conducting Army-funded experiments on developmentally disabled children. Based on true events, Willowbrook addresses the awful conditions in which people with developmental disabilities were warehoused and the controversial research experiments that took place in the 1960s

"Buddy's World" is proud to say that we helped fund
The Willowbrook Project at KickStarter!

 Our Credits in the film are to 
Rubinstein -Taybi Syndrome Children Everywhere

Watch the trailer 
[you can turn the music off at the bottom of this blog or not]




Box Office

Single tickets are now on sale! Check the Box Office for more details. Download a PDF of the 2012 Film Guide. Check our Maps page for directions to all venues: www.tribecafilm.com/maps.
Fri 4/20 6:00PM AMC Loews Village 7 - 1 Buy Tickets
Sat 4/21 11:59PM AMC Loews Village 7 - 1 Rush Tickets
Mon 4/23 2:30PM AMC Loews Village 7 - 3 Rush Tickets
Sat 4/28 12:15PM Clearview Cinemas Chelsea 6 Buy Tickets
Sun 4/29 7:30PM Tribeca Cinemas Theater 2 Buy Tickets

About The Director
Advertisement Advertisement
 
Born and raised in Liverpool, England, Ross moved to Los Angeles in 2007 to begin his MFA in Film Production at the prestigious USC School of Cinematic Arts. During his time at USC, Ross was awarded the Bill Mechanic Scholarship in 2008, the Tania Trepanier Scholarship in 2009 and in 2010 was awarded the Alfred P. Sloan Foundation Production Grant to make Willowbrook.

His 16mm short film Last Day has screened at numerous film festivals around the world, including the Foyle Film Festival in Ireland, the Las Vegas Film Festival and the International Student Media Festival, where it won Best Short.

Ross produced a commercial for Cisco Systems featuring best selling author Tim Ferriss that gained the most online views in the 2009 Cisco Digital Cribs Contest and went on to win the Audience Choice Award. He has also directed numerous music videos including A Little Brighter for British singer/songwriter Pete Lawrie (Island Records).

In his spare time Ross enjoys playing his guitar, hiking the hills of Los Angeles and is currently writing a screenplay set in Liverpool in 1961 about original Beatles drummer Pete Best.

Get your copy of Willowbroook

 There  is still a considerable amount of money to be raised that they need to make dvds, enter the film into festivals, organize screenings and promote the movie. We need your help to make this possible. Any amount you can donate will tremendously help our efforts.


And if you donate $15 or more, they will send you a DVD copy of the movie!

GET THE MOVIE here : http://www.willowbrookmovie.com/



Horrific Medical Testing at NYC School Exposed 
at Tribeca Film Festival 

MANHATTAN — A movie set to premiere at the Tribeca Film Festival on Friday exposes horrific medical tests that were conducted on mentally disabled children as recently as 40 years ago in Willowbrook State School, a former mental institution in Staten Island.

Read full article here: horrific-medical-testing


Recalling the horrors of Staten Island's 
Willowbrook State School

Published: Monday, April 02, 2012, 9:30 AM     Updated: Tuesday, April 03, 2012, 10:20 AM


STATEN ISLAND, N.Y. -- In a darkened room, the boy stares out a frost-covered window.
 Read full article here: recalling_willowbrooks_horrors


Gallery: Willowbrook State School 

SEE FULL gallery/willowbrook HERE


This postcard depicts the former Willowbrook State School, which is now home to the College of Staten Island.


Patients are left without medical care at the former 
Willowbrook State School in this photo from 1972.


A patient at the former Willowbrook State School packages 
screws as part of a money-making venture.


A patient is left to himself in a large room at the former Willowbrook State School in 1971, the same year the school was exposed for its conditions.

More about Willowbrook


A scene from Willowbrook: The Last Great Disgrace (1972)

Geraldo Rivera reporting from Willowbrook

 

 

If you can, help others; if you cannot do that, 
at least do not harm them.
Dalai Lama



 

 

 


Thursday, April 19, 2012

It's Coming! The New CushPad for iPad and FREE APP GIVEAWAY

This project goal was mad e and will be funded on Saturday Jun 2, 3:09am EDT. 
-FREE App Offer Over-

What We've Been Waiting For

The NEW CushPad is COMING

The CushPad - A Pillow for Your iPad!

A Product Design project in Chicago, IL by Adam Raby

Isn't it COOL!

The CushPad is a cushion that has been precisely shaped to comfortably and securely hold your iPad (the iPad 2 or the new "iPad 3") on uneven or unstable surfaces like a couch, bed, seat-tray table on a plane, or your lap. It's like a pillow for your iPad! It's 100% MADE IN CHICAGO IL USA.



Are you an iPad couch potato? An iPad night owl? 
Or a parent of children hooked 
on their iPads -- then you need the CushPad

Adam the inventor of The CushPad
has created a KickStarter page to help fund his CushPad Project

What is KickStarter?

Kickstarter is a platform where Project Creators run campaigns 
to fund creative projects  by offering rewards to raise money from 
Backers. In this case you get a great CushPad at a discounted price!
Cool RIGHT!  

Kickstarter.com Terms of Use


How It works 
The KickStarter page will allow you to pre-purchase a new CushPad at a discount. However, you will only be charged if the funding goal is met. At that time they will  give their manufacturers the green-light and start cranking out the new CushPads to everyone who pledged.

-choose from 4 colors-
STOP

You asked they listened, a new color has been added!

The New CushPad Pretty in PINK


You can be a part of this project and get a 
CushPad at a discounted price RIGHT NOW!

Become part of the CushPad Revolution TODAY! . 

Adam has made a great video demonstrating
the New CushPad at KickStarter and our own Buddy is in it!

BUT WAIT

There's More!


For every "Buddy's World" Subscriber/Follower that backs the 
Cushpad Project at KickStarter with a Pledge of $30.00 or more you will get a FREE app

 [You can Pledge any amount of $1 or more is very much appreciated,
 but $30.00 get's you a FREE app]

"BUDDY'S WORLD"

will GIFT YOU one FREE iPad app of your choice
value .99  [Sorry USA Apps ONLY]

Here's all you need to do

Watch the Cushpad VIDEO and make a  Pledge of $30.00 or more at KickStarter

LEAVE A COMMENT FOR ADAM 
ON THE KICKSTARTER PAGE AFTER YOU PLEDGE
THAT YOU HEARD ABOUT THE CUSHPAD PROJECT FROM 

"BUDDY'S WORLD" 

  Follow CushPad on Twitter

Follow us on twitter
TWEET This Blog with - RT  @RTS_KIDS_iPads @CushPad
Subscribe to or Follow and Share this blog on Facebook

Come back to "Buddy's World"
 leave us a comment that you pledged, post the link to your KickStarter 
comment and what app you want.
[Please leave your email address so I can gift you the app]

easy huh 

Meet The creator of The CushPad

  Click Here Go Go

Grab your CushPad and FREE app Today

Notice

FREE apps will be GIFTED after Saturday 
Jun 2, 2012 ONLY if the $10,000 Goal is met at 
Kickstarter, so start sharing. 

THANK YOU  
FROM "BUDDY'S WORLD"



Wednesday, April 11, 2012

Fighting Monsters with Rubber Swords: Andy Richter Saddens the Universe


When we talk about the dehumanization of people with disabilities, there's a general dismay that receives a certain amount of lip service, b...